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How to Evaluate Health Information Found on
the Internet
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- Some Tips from the FDA:
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While written with drug information in mind, these
points apply to health and medical information in general, too.]
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FDA staff and others familiar with Internet medical
offerings suggest asking the following questions to help determine the
reliability of a Web site:
• Who
maintains the site? Government or university-run sites are among the best
sources for scientifically sound health and medical information. Private
practitioners or lay organizations may have marketing, social or political
agendas that can influence the type of material they offer on-site and which
sites they link to.
• Is there
an editorial board or another listing of the names and credentials of those
responsible for preparing and viewing the site's contents? Can these people
be contacted by phone or through E-mail if visitors to the site have
questions or want additional information?
• Does the
site link to other sources of medical information? No reputable organization
will position itself as the sole source of information on a particular
health topic. On the other hand, links alone are not a guarantee of
reliability, notes Lorrie Harrison of FDA's Center for Biologics Evaluation
and Research. Since anyone with a Web page can create links to any other
site on the Internet - and the owner of the site that is "linked to" has no
say over who links to it - then a person offering suspect medical advice
could conceivably try to make his or her advice appear legitimate by, say,
creating a link to FDA's Web site. What's more, health information produced
by FDA or other government agencies is not copyrighted; therefore, someone
can quote FDA's information at a site and be perfectly within his or her
rights. By citing a source such as FDA, experienced marketers using careful
wording can make it appear as though FDA endorses their products, Harrison
explains.
• When was
the site last updated? Generally, the more current the site, the more likely
it is to provide timely material. Ideally, health and medical sites should
be updated weekly or monthly.
• Are
informative graphics and multimedia files such as video or audio clips
available? Such features can assist in clarifying medical conditions and
procedures. For example, the University of Pennsylvania's cancer information
site, called OncoLink, contains graphics of what a woman can expect during a
pelvic exam. Bear in mind, however, that multimedia should be used to help
explain medical information, not substitute for it. Some sites provide
dazzling "bells and whistles" but little scientifically sound information.
• Does the
site charge an access fee? Many reputable sites with health and medical
information, including FDA and other government sites, offer access and
materials for free. If a site does charge a fee, be sure that it offers
value for the money. Use a searcher (see "Sources of Internet Health
Information") to see whether you can get the same information without paying
additional fees.
• If you
find something of interest at a site - say, a new drug touted to relieve
disease symptoms with fewer side effects - write down the name and address
of the site, print out the information, and bring it to your doctor, advises
Valencia Camp of FDA's Office of Information Resources Management. Your
doctor can help determine whether the information is supported by legitimate
research sources, such as journal articles or proceedings from a scientific
meeting. In addition, your doctor can determine if the drug is appropriate
for your situation. Even if the information comes from a source that is
reputed to be reliable, you should check with your doctor to make sure that
it is wise for you to begin a certain treatment. Specific situations (such
as taking other drugs) may make the therapy an inadvisable choice. Your
doctor can decide whether the drug is suitable for you and may be able to
offer more appropriate alternatives.
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-- From FDA Consumer June 1996, reprinted with
permission.
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Barnard Student Health Services adds:
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- Information overload can be hazardous to your health!
Evaluating the quality of an internet medical site should be used as a
filter to exclude information that may be unreliable, and therefore
confusing, or even harmful. Here are some additional tips to add to those
provided by the FDA.
- • Consider the goals of the website in evaluating the information
received. If you are getting information from discussion groups or chat
rooms, treat it as conversation. Conversation should be verified by
reliable sources.
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- • Be
cautious of sites that do not identify their affiliation, perspective,
or source of information. Consider who is paying for the site; how might
that affect the information offered?
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- • Verify
information, particularly if it is new or different. This may require a
trip to the medical literature (Grateful Med link).
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- • Look
for sites that are reviewed by health professionals. Look for a listing
of the editorial board or academic affiliation.
- Finally, review the information with a health care
provider who knows YOU, and can help you put what you have learned into
perspective.
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- HAPPY SURFING!
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